In my forty eight years I have had many adventures that were fun and exiting like camping, fishing and traveling. But my life adventures are the ones that have shaped who I am today. Marriage, giving birth, divorce, being a single mom, death of loved ones and my journey with ALS are the adventures I treasure.
My life adventures have taught me about love, real friendship, priorities, appreciation of all life, acceptance of death and my own inner strength. I had no idea of what I was capable of until I was tested in ways I could never even have dreamed of. I now believe trials are a gift that push us to be better human beings and can inspire others to accept their own trials.
After beating the odds of an incurable disease I have realized that in a way technology has become a cure of sorts. The adventure of researching and networking my illness has given me a better quality of life. Learning how to use a computer that will bank my voice and type/talk with just my eyes. A lift chair recliner that gives me a gentle hand up. wheelchairs, shower stuff, bidets and eating utensils. The new Diaphragm Pacer that will expand your diaphragm for you so you might not need a ventilator. With new technology I will retain my ability to chose my life adventures.
I have lived to watch my baby give birth to her baby. Built a team to help others like me to live until a cure, got my first tattoo (heart of a warrior), won a gold in the Pan American trials for disabled sailing, I have a pool in my garage, created a dream home in the mountains, and I met and married a wonderful man (online) that was willing to join me on more adventures to come.
Zipline and disabled skiing are next but my future adventures are endless!
Tammy'Warriors raised almost $5000 this year and my Dave will be spotlighted in November for National Family Caregiver Month on the ALS website. :) Pictures of 2009 walk are below.
I'm a woman who is on a mission to educuate people about ALS. 15 cases diagnosed a day in the US. There is no cure and most die between 2-5yrs.
Ask me about ALS?
I have lived w/ALS for 19yrs and found love 6yrs ago after 13yrs as a single mom. Now I have my 4yr old grandson and love to keep me going. I am not ALS it's just a part of who I am. It has been a blessing to have been given time to cut through the crap and see the beauty in life.