tag:blogger.com,1999:blog-19035377.post115430651901023257..comments2023-11-05T03:28:26.523-08:00Comments on The Daily Warrior: Sunday Scribbling- My Two CentsTammy Brierlyhttp://www.blogger.com/profile/14673290512175050093noreply@blogger.comBlogger26125tag:blogger.com,1999:blog-19035377.post-1155049033072184662006-08-08T07:57:00.000-07:002006-08-08T07:57:00.000-07:00This is outrageous and I totally agree that not en...This is outrageous and I totally agree that not enough attention is given to ALS. Don't ever give up or believe what the doctors say. They told my grandmother she'd never walk again at least 3 times in her life and she proved them wrong as you are each time. Let me know if there's anything I can do to help get the word out. Hugs, ~ LoriLori @ Purple Snapdragonshttps://www.blogger.com/profile/16377467741241927547noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154888507304152122006-08-06T11:21:00.000-07:002006-08-06T11:21:00.000-07:00Hear, hear!Hugs,VHear, hear!<BR/>Hugs,<BR/>VVhttps://www.blogger.com/profile/05099178229759202562noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154626296623222312006-08-03T10:31:00.000-07:002006-08-03T10:31:00.000-07:00AMEN! http://journals.aol.com/daddyleer/Caregiving...AMEN! http://journals.aol.com/daddyleer/CaregivinglyYours/Anonymoushttps://www.blogger.com/profile/14000299655117252000noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154596753200914232006-08-03T02:19:00.000-07:002006-08-03T02:19:00.000-07:00Great stuff Tammy. This is the best use for a blo...Great stuff Tammy. This is the best use for a blog and you write so clearly and so well - it makes you a powerful advocate.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154492523898483292006-08-01T21:22:00.000-07:002006-08-01T21:22:00.000-07:00Thank God, You were able to be in that ALS trial T...Thank God, You were able to be in that ALS trial Tammy! LOVE and PRAYERS for you sweetie to stay strong and keep the faith! You are on my mind this month as you get ready for your daughter's wedding! xoxooxxxo ps. get plenty of rest!the word verification is jibSPA! SOOOOO don't forget to treat yourself to relaxation!turquoise crohttps://www.blogger.com/profile/05873392444199186644noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154455599745099242006-08-01T11:06:00.000-07:002006-08-01T11:06:00.000-07:00I've never had a massive amount of faith in doctor...I've never had a massive amount of faith in doctors. I guess most doctors either want an easy life or they want the glory from cases they can fix in an obvious way. Maybe that's being unfair. Anyway, it's a good job the world has people like you to speak up for those who are weaker and need your help.Kamsinhttps://www.blogger.com/profile/07039627235813416300noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154441634536056772006-08-01T07:13:00.000-07:002006-08-01T07:13:00.000-07:00Tammy, this is an empowering piece! - thank you fo...Tammy, this is an empowering piece! - thank you for this.Kimhttps://www.blogger.com/profile/16867218249789726722noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154419495486641642006-08-01T01:04:00.000-07:002006-08-01T01:04:00.000-07:00Information is power - you are doing a good thing....Information is power - you are doing a good thing.Kay Cookehttps://www.blogger.com/profile/01791873464409271216noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154399992191725742006-07-31T19:39:00.000-07:002006-07-31T19:39:00.000-07:00Thanks for this powerful post! I love how you are...Thanks for this powerful post! I love how you are taking your two cents beyond the page of your blog and using it to help others. Blessings to you on this great new role for you!Kim G.https://www.blogger.com/profile/02580039996408082406noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154391065159441732006-07-31T17:11:00.000-07:002006-07-31T17:11:00.000-07:00pps. can you give me your email address please as ...pps. can you give me your email address please as my mac does not read yours for some reason??Madeleinehttps://www.blogger.com/profile/03515694965912176762noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154390959909960052006-07-31T17:09:00.000-07:002006-07-31T17:09:00.000-07:00Tammy i really do find this abhorrent. it mortifie...Tammy i really do find this abhorrent. it mortifies me to hear the little that is done of behalf of these sufferers.<BR/>you are little piece of dynamite in all of this. it's people like you who can really help others through your extra kind efforts.<BR/>can you feel the admiration coming through the screen, hon?<BR/><BR/>love you just a bit more- again.xx<BR/><BR/>ps i would have commented earlier but your post did not come up. :(Madeleinehttps://www.blogger.com/profile/03515694965912176762noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154382971376702352006-07-31T14:56:00.000-07:002006-07-31T14:56:00.000-07:00It is funny, because as I clicked on to your blog,...It is funny, because as I clicked on to your blog, I thought again abotu how much I love the title you gave it. "The Daily Warrior". It is such a great name! And then I read this, and I see how PERFECT it is for you, and your amazing spirit! I just love people like you. I love people who grab life by the balls, no matter what comes their way. You are so inspiring.<BR/><BR/>:)Amberhttps://www.blogger.com/profile/04680903854519503303noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154381913599843482006-07-31T14:38:00.000-07:002006-07-31T14:38:00.000-07:00Tammy you ARE a warrior - and your desire to help ...Tammy you ARE a warrior - and your desire to help others is the highest expression of compassion. You are beautiful and brave. Sending you much love x x xclaireylovehttps://www.blogger.com/profile/16691439928758477628noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154371308957967482006-07-31T11:41:00.000-07:002006-07-31T11:41:00.000-07:00Wow Tammy, I didn't know you've had ALS for 16 yea...Wow Tammy, I didn't know you've had ALS for 16 years.....you're amazing! I love that you advocate for yourself and I'm only sorry that you have to do so. It's embarrrassing and shameful that our country does so little in the way of medical research. <BR/>You truly inspire me.kristenhttps://www.blogger.com/profile/09471813805433407905noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154359316627054072006-07-31T08:21:00.000-07:002006-07-31T08:21:00.000-07:00Grrrrr.... agreeing so so much about doctors who w...Grrrrr.... agreeing so so much about doctors who won't research; won't read a lousy article; intimidated about helping with something there is no cure for; doctors who make you beg; doctors who abandon; doctors who tell patients to be their own advocate - then resent it. So difficult not to curl up in a ball of rage. Admiring your positive attitude and the constant love of your husband and friends.AscenderRisesAbovehttps://www.blogger.com/profile/00407455211305123884noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154358400391120252006-07-31T08:06:00.000-07:002006-07-31T08:06:00.000-07:00Your experiences really open the eyes of those of ...Your experiences really open the eyes of those of us who do not see this disease on a daily basis. Your advocacy is the reason you have been given more time. Only the strong survive and you are certainly strong. I am now much more understanding if I see someone amiss when they are out in the great about.Taborhttps://www.blogger.com/profile/15257045780724471840noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154356014713744782006-07-31T07:26:00.000-07:002006-07-31T07:26:00.000-07:00Tammy, thank you for having the courage to speak u...Tammy, thank you for having the courage to speak up about this situation. All too often patients must struggle to become advocates for their healthcare, all at a time when they and their families are at their most vulnerable points. You are so right - doctor's need to step up and continue to provide the utmost effort for every patient, and certainly not just for the ones whose diseases are curable.Beccahttps://www.blogger.com/profile/14623887166087444590noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154346530957643662006-07-31T04:48:00.000-07:002006-07-31T04:48:00.000-07:00Tammy, thank you for this informative, powerful po...Tammy, thank you for this informative, powerful post. I've seen examples time and time again where people struggling with serious illness and medical conditions have to become their own advocates, simply to get the treatment they need and deserve. The work you're doing helping others while actively fighting your own battle is courageous and inspiring.paris parfaithttps://www.blogger.com/profile/05457437124988976587noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154339665422102402006-07-31T02:54:00.000-07:002006-07-31T02:54:00.000-07:00You are an amazing woman! More support groups for...You are an amazing woman! More support groups for people with chronic illnesses need an advocate like you. And you going to the gym!?! Blessings to you for a long and healthy life!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154332598601298962006-07-31T00:56:00.000-07:002006-07-31T00:56:00.000-07:00I don't like the fact that doctor's give timelines...I don't like the fact that doctor's give timelines. Who made them God? My brother had a great oncologist and when my brother asked him how long he had, he said he had no idea and the only person who knew that was God. They would just be a team and take it day-by-day. I honestly think this kept my brother alive even longer than he expected. Doctors need to be educated before they treat someone with a disease. You are just the person to bring this to light for ALS. You are a walking miracle!Chrishttps://www.blogger.com/profile/17643693748026932502noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154323139098630202006-07-30T22:18:00.000-07:002006-07-30T22:18:00.000-07:00Tammy, when you have time, check out the journal C...Tammy, when you have time, check out the journal Caregivingly Yours. It is on my list of other journals in my journal. I don't know how to add a link here. Anyway, he wrote a similar entry tonight; his wife has MS. Very insightful; both yours and his.<BR/><BR/>bettybettyhttps://www.blogger.com/profile/06323135450742337670noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154320938769311032006-07-30T21:42:00.000-07:002006-07-30T21:42:00.000-07:00I had no idea doctors knew so little and did so li...I had no idea doctors knew so little and did so little for patients with ALS. That's appalling. (Although I'm not as surprised as I wish I was, since my opinion of Western medicine isn't the highest! Appalled yes, surprised no.)<BR/><BR/>I hate the way doctors do their time frame predictions too. It's one thing for them to say that people at a certain stage of a certain disease have say a 1 in 10 chance of living 5 years (pulling numbers out of thin air here just as an example), but they have no way of knowing WHO is the one and who are the nine, so it seems to me that those numbers mostly just hurt people's hope. Bah! Men with god complexes!<BR/><BR/>Sorry, Tammy, didn't mean to turn a simple comment into a rant. Thank you for a thoughtful and interesting post!Deb Rhttps://www.blogger.com/profile/03322863748665701618noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154318494380257622006-07-30T21:01:00.000-07:002006-07-30T21:01:00.000-07:00Tammy, through reading here, I know you have suffe...Tammy, through reading here, I know you have suffered with ALS. I know that with your fiery spirit and your courage, you can reach so many people with your healing hands and words.<BR/>My luck to you always.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154314444656420092006-07-30T19:54:00.000-07:002006-07-30T19:54:00.000-07:00You truly are a warrior, Tammy.One of the columnis...You truly are a warrior, Tammy.<BR/><BR/>One of the columnists for our newspaper suffered with ALS and shared the entire journey from the shock of diagnosis through to his last article, which was published about two weeks before his death. Because of his courage to share his struggles, all of his readers were granted a first-hand account of this puzzling disease and its affect on his life. Keep fighting for the rights of those who are less informed; they need you!Starhttps://www.blogger.com/profile/14814216163517685438noreply@blogger.comtag:blogger.com,1999:blog-19035377.post-1154314048422958242006-07-30T19:47:00.001-07:002006-07-30T19:47:00.001-07:00Tammy,That was very informative. People who have t...Tammy,<BR/><BR/>That was very informative. People who have the disease need to know these things. I hope you have an impact, with your knowledge , you should have.<BR/><BR/>You go, Tammy!Bellehttps://www.blogger.com/profile/15783831386634568807noreply@blogger.com