I have always had an idea for continuing my quality of life once I could no longer walk. It started with my wacky sense of humor, but through the years it's turned into a family joke with a life of its own. My idea is to velcro the walls in my house and wear a velcro suit so that I can join Dave, family and guests throughout the house. Not wanting to miss out on any of the fun or conversations due to being confined by space or ability.
I would simply have Dave stick me to the wall instead of always being in a wheelchair or laying down. I used to say "just stick a bucket under me" but now we add to the story with embellishments of catheters and tubes as the years with ALS keep adding up (a good thing). No sore butt, bedsores or boredom for me! Dave recently added the idea of his own suit so I could be stuck to him when he gardens. You ever see that commercial of that woman stuck to her husband to remind him of his health? We would do a more fun version ;)
We shared my wacky idea with Dave's 83yr old mom to see her reaction and she said, straight faced, "I saw that on Letterman once." We looked at each other and busted up laughing. It's all in fun, but to me it's full of possibilities and hope. Old family joke? Maybe! I found that segment Dave's mom saw on YouTube of Letterman wearing MY IDEA! Oh well maybe I'll invent a nicer looking suit ;) http://www.youtube.com/watch?v=-kDG018l4lA