As my grandson grasps the coming of fall, he will forever link it to me. This incredible little boy understands way beyond his years the ugly side of life. He sees my struggle as he rides on my lap in a sea of faces he may never know. Laughing and playing in the leaves.
He knows so little of Amyotrophic Lateral Sclerosis (ALS) and yet he will reach out his three year old hand to help me. He will wear his "Tammy's Warriors" shirt with pride and get his face painted and tummy fed. Each fall he walks by my side to raise awareness of ALS. It is an ambitious task each year to educate for a cure but when I see his joy I keep on task.
Everyone he grows to know throughout the years will find out ALS is not just what a famous baseball player had. But that ALS steals your body until you can no longer move or speak on your own. It steals grandma kisses and hugs. He will share the technology that keeps coming along and one day we will dance, not walk, in celebration of a cure.
Everyone searches for their purpose and I have found mine. Average life expectancy is 3-5yrs with ALS and there is no cure, no remission. I have had it over 19 yrs, why me? Because I can tell you what it is and how it kills. If not for survivors raising awareness there will be no cure and many more will die silently. It can hit anyone at anytime wouldn't you want to know.
This is my grandson TK at last years Oct. walk.