Delayed - Edge - Focus
I heard him utter beneath his breath
I'd never want to live like that.
How would you know? I asked
with anger rising defensively.
That could be me one day living on
the edge locked deep inside.
I saw the man looking at the world before him
hearing its symphony of sounds.
Loved by family and friends, he had value
still a contributor to this world.
He has choices to give him focus
with technology as an ally.
He may not speak or move his body but
he can feel the wind brush his face.
His life might get delayed in its pace
but he has so much yet to do.
How do we know what we would do
until we are really there?
I was inspired to write this after watching the "Diving Bell and the Butterfly." I related to the character that was totally locked in his body. There is a big debate going on at the ALS site on whether or not ALS is fatal. Many patients on ventilators feel they are very much alive and living well. Others feel that is not really living, its a burden on family and a financial drain. I hope no one told Steven Hawking that because he just might find a way to deck them. It's a personal choice that we should get positive support in making. Many patients don't have supportive families and are given no hope to keep fighting for a cure from the majority of doctors. ALS patients are sent home with a time frame and hospice while similar illnesses are sent home with rehab and resources. It saddens me greatly! This is not so much of a poem as it is a commentary because that's just what came out.