I went from a chest cold and sinuses to migraine hell. This all happened during my peri-menopausal "cycle." ALS is greatly effected by any of these by themselves, but when you mix them together it slams you to your knees. My priorities were to keep my lungs clear without my head exploding. I was very diligent in using a humidifier, Ibuprofen, Imitrex, Musinex PE and REST. I refused to re-schedule all of my upcoming appointments in to spring. I even needed to add an appointment to get my hormone levels checked, thanks Oprah. :)
Last Tuesday was my lung function test for my ALS progression and upcoming nose polyp surgery. My cold was at it's end but I was still in a migraine fog. I was in the upper 90% two years ago but I got a lousy 87% this time. Good enough for surgery but it skews my stats for my progression. I was 104% five years ago so I'm pushing to stay in the 90's and you know I will.
I met with my new Neurologist at UC Davis on Friday and he made a great first impression. He is young, from Sweden and smart. He was amazed at my lack of progression and spent two hours with me. He confirmed the ALS, but is going after 18yrs of medical records to look at all of my tests to confirm. He may do a few again because he has never seen a case like mine. While I was there I begged for help with my migraines. He put me on Amitriptyline which will help to prevent migraines, bladder, drooling and my laughing/crying outbursts. (ALS side effects) I have almost been hurt by laughing out of control. Very weird feeling. Amitriptyline is actually an anti-depressant but is used for so much more. His new ALS clinic starts this week and I feel that I am in great hands for the future. AMEN!
Thank you for all of your well wishes. Dave is feeling great and I'm at 70%, and climbing. I had to hit ALL READ on 196 posts but I did skim. lol I miss my blog and friends. XXOO Tomorrow will be an exciting day! "I have a dream" will take on a bigger meaning for us all. See ya soon!
P.S. Happy 1yr birthday to our grandson Warrick (Jan 14th), Happy 43rd Deb, Diana's Texas Chili was the bomb, keep it up Batman and Jodi/Robbin ROCK!